My Story With Chronic Illness
Before → Diagnosis → Learning → Now
Before
Prior to my diagnosis with IBD, I lived a relatively “normal” life. I spent a lot of time with my friends, was on my school tennis team, went out to many restaurants with my family, and never got tired!
Diagnosis
When I was initially given a diagnosis, I did not know what IBD was at all. Before hearing the word “chronic,” I assumed I had a horrible stomach infection. After I started feeling better, I began to think that I did not need medications to keep my body going
Learning
After I started school, I quickly discovered that life would no longer be normal. I needed to take care of my body more than the average person. I began tracking my water intake, monitoring my food choices, and visiting the doctor frequently.
Now
As of January of 2026, I am in remission!
What I’ve Learned
It’s okay to cancel plans
You don’t have to explain everything to everyone
IBD does not define you; you are just as capable of achieving your dreams with IBD
Instead of fighting against IBD, learn to live alongside it
It’s okay to grieve your old “normal”
There is no shame in asking for help when you need it
Why I created this site
I created this website not only to share my story but also to make your voice heard. I wanted other teens and young adults facing chronic illness to feel represented. This is a safe space to learn, laugh, and build a strong community of individuals who are not afraid to tell their stories and inspire those seeking to find their own voice. So whether you recently got diagnosed or stumbled across this page for a loved one with IBD, I hope this space makes you feel heard, seen, and understood.
Thank YOU for being here.